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Physical Therapy Clinic in New York City

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Mike Earl
Physical Therapy Clinic in New York City

Ehlers-Danlos Syndrome - Joint instability


Joint instability is a common symptom in various subtypes of Ehlers-Danlos Syndrome (EDS). It occurs due to the inherent weakness and laxity of the connective tissues, including ligaments and tendons, which are responsible for providing stability to the joints. Here are some strategies to manage joint instability in EDS:


Physical Therapy: Working with a physical therapist experienced in managing EDS can be highly beneficial. They can design an exercise program to strengthen the muscles surrounding the affected joints, which helps provide additional support and stability. The focus is often on low-impact exercises, such as swimming or cycling, to improve muscle tone without excessive joint stress.


Joint Protection: Learning proper body mechanics and techniques to protect the joints is important. This may involve avoiding or modifying activities that put excessive stress on the joints, using assistive devices like braces or splints for added stability, and learning techniques for joint relocation in case of dislocations or subluxations.


Strength Training: Strengthening the muscles around the affected joints can help compensate for the inherent joint laxity. Resistance exercises targeted at specific muscle groups can enhance joint stability and reduce the risk of dislocations or subluxations. However, it is crucial to work with a knowledgeable physical therapist or exercise specialist to ensure exercises are appropriate and safe for your specific condition.


Joint Bracing or Taping: External support, such as bracing or taping, can provide additional stability to the affected joints. These devices can help limit excessive joint movement, reduce the risk of dislocations or subluxations, and provide proprioceptive feedback to improve joint position sense.


Lifestyle Modifications: Making certain modifications to daily activities can help reduce joint stress and minimize the risk of injury. This includes using ergonomic tools and adaptive equipment to decrease joint strain during tasks, pacing activities to avoid overexertion, and practicing good posture and body alignment.


Orthopedic Consultation: In some cases, orthopedic consultations may be necessary to assess joint stability and explore potential surgical interventions for severe joint instability or recurrent dislocations. Surgical options may include ligament reconstructions, joint stabilizations, or other procedures aimed at improving joint function and reducing instability.


Remember to consult with a healthcare professional experienced in managing Ehlers-Danlos Syndrome to determine the most appropriate strategies for your specific situation. Each person with EDS is unique, and a personalized approach is essential for effectively managing joint instability and minimizing associated risks.

EDS stands for Ehlers-Danlos Syndrome, which is a group of rare genetic disorders affecting the connective tissue in the body. To diagnose EDS, a doctor will typically begin with a physical exam and review of the patient's medical history. They may also order genetic testing to look for mutations in genes associated with EDS.


The physical exam may involve testing the flexibility of the patient's skin, checking for joint hypermobility, and looking for other physical signs of EDS, such as scarring or easy bruising. The doctor may also perform imaging tests, such as MRI or CT scans, to evaluate joint and tissue damage.


There are currently 13 subtypes of EDS, each with its own specific diagnostic criteria. A doctor may use a combination of clinical and genetic testing to determine the subtype of EDS that a patient has.


It is important to note that EDS is a complex condition and can be difficult to diagnose. If you suspect that you or a loved one may have EDS, it is important to consult with a doctor who is knowledgeable about the condition and can provide appropriate testing and treatment.



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