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Physical Therapy Clinic in New York City

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Mike Earl
Physical Therapy Clinic in New York City

Handling the Symptoms of Ehlers-Danlos Syndrome


Managing the symptoms of Ehlers-Danlos Syndrome (EDS) typically involves a combination of medical interventions, lifestyle modifications, and supportive therapies. It is important to work closely with a healthcare team experienced in managing EDS to develop an individualized treatment plan. Here are some strategies that can help in handling the symptoms of EDS:


Pain Management: EDS-related pain can be chronic and may require a multimodal approach. This may include medications (such as nonsteroidal anti-inflammatory drugs, analgesics, or low-dose tricyclic antidepressants), physical therapy, occupational therapy, and alternative therapies like acupuncture or hydrotherapy.


Joint Support: Protecting and stabilizing joints is crucial. This can be achieved through orthotic devices, braces, taping, or splinting, which help provide stability and reduce the risk of joint dislocations or subluxations.


Physical Therapy: Working with a physical therapist experienced in EDS can help improve muscle strength, joint stability, and flexibility. Therapists can provide tailored exercise programs, teach proper body mechanics, and recommend assistive devices if needed.


Wound Care: Due to fragile skin and poor wound healing, proper wound care is essential. It involves cleaning wounds thoroughly, applying appropriate dressings, and seeking medical attention for any signs of infection or slow healing.


Gastrointestinal Management: Many individuals with EDS experience gastrointestinal symptoms such as reflux, constipation, or irritable bowel syndrome. A dietitian can help develop a personalized meal plan, which may include fiber supplementation, adequate hydration, and dietary modifications to alleviate symptoms.


Cardiac Monitoring: For individuals with certain EDS subtypes, regular cardiac evaluations may be necessary to monitor for potential cardiovascular complications. This may include echocardiograms, electrocardiograms, or other diagnostic tests.


Emotional Support: Living with a chronic condition like EDS can be challenging emotionally. Seeking support from mental health professionals, joining support groups, or connecting with online communities of individuals with EDS can provide valuable emotional support and coping strategies.


It's important to note that Ehlers-Danlos Syndrome is a complex condition, and management should be tailored to the individual's specific needs. Regular follow-ups with healthcare providers and open communication about symptoms and concerns are essential for ongoing care and adjustment of treatment strategies.


EDS, or Ehlers-Danlos Syndrome, is a group of genetic disorders that affect the body's connective tissues. The classic subtype of EDS is one of the most well-known forms of the condition and is characterized by hypermobility of the joints, skin that is soft, smooth, and easily bruised, and a tendency toward scarring and poor wound healing.


People with classic EDS may also experience chronic pain, muscle weakness, and gastrointestinal issues. The condition is caused by a defect in the production of collagen, a protein that provides strength and structure to connective tissues throughout the body.


Treatment for classic EDS typically involves managing symptoms through physical therapy, pain management, and wound care. There is currently no cure for EDS, but with proper management and care, many people with the condition are able to lead active and fulfilling lives.



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